MRI on wednesday

 

Hey everyone!

Just a quick update that we have an MRI this upcoming Wednesday, the 17th, at 7AM. This was a rescheduled appointment (it takes a really long time to reschedule these!) from last time when ours was canceled because Lewis was sick. It feels like it’s been hard for our family to stay out of sickness for very long in these past few months, which has been draining. Please pray that Lewis stays well over these next few days so that we’re able to get this MRI done!

As always, the week of an MRI we start to get those nervous feelings again — the doubts about Lewis’ healing and successful surgery, the feeling that this could start all over from square one again. We’re asking for the Lord’s peace to carry us through this week and up to our appointment with our doctor this Friday to discuss the scans. And, of course, for good news that Lewis is still tumor-free!

We’re also facing an issue with our insurance regarding growth hormone. We’ve been feeling so blessed that the growth hormone shot has been going so well, but last week we received notice that our insurance had withdrawn its coverage of our weekly injection, which we do at home. They claim to prefer a different medication, which is a daily shot instead of a weekly one. The idea of switching to a daily shot feels heavy and would be so much harder on Lewis. There’s still hope that our doctor’s appeal could overturn the decision, but it’s not looking super positive at this point. Even so, we’re asking this this would be overturned and that we’d find a way to continue on this current medication.

Thank you for those that have been praying for Emmett too! His surgery last week went well, and he’s been recovering great. We did recently discover that he hasn’t been growing lately, however, so we’ve been told to start feeding him as much solid food as possible. It’s not connected to the surgery, but it’s been a little worrisome. Since we found out, he has already been eating a lot more food & that’s made him really happy! We didn’t realize how much he loves to eat!

Thank you all for your love and support. It means so much to us, and we continue to trust in God for all our needs. This was going to be just a quick update, but as usual, there always seems to be a lot going on. Thank you so much for lifting us up to the Lord and for keeping us in your prayers!