hi everyone!

thank you so much to everyone who contributed to our facebook fundraiser for Starry Night by Pediatric Brain Tumor Foundation. we ended up raising $1,573 for more research against pediatric brain tumors. THANK YOU so much!!

and thank you to everyone who participated in lighting a lantern to support us & the other families fighting pediatric brain tumors! it was encouraging to see your pictures. we watched the lantern lighting ceremony while we ate burgers for lewis’ birthday, it was so cool to see other families involved in the fight & pressing on!

we have been lucky to get more involved in the cancer community this past month through pumpkin patch, farm, & race visits. we are looking forward to getting to know these amazing families.

our boy had a lot of fun celebrating his second birthday & he loves being TWO years old now! he is quite chatty & loves all sorts of vehicles. he is so fun to be around!

while it’s been a fun past month, we’ve also received some not great news. lewis had more growth hormone tests done, which came back as most likely deficient for growth hormone. he was also recently diagnosed with astigmatism in his right eye & there is a developing concern that his right eye’s vision is starting to become compromised, we are trying to get this checked out by a second party (this potential vision loss is making us very nervous!). please be praying directly against these things & that we could see healing in these areas.

on wednesday morning, we are going in for his quarterly full MRI. we are having his catheter tapped before the MRI, so we will be able to see how much of a difference drawing fluid out of this catheter is doing & hopefully get some more info on that. our biggest prayer ask right now is for the catheter to draw out as much cyst fluid as possible! so much so that it would change the shape of the cyst & decompress it a LOT, as much as it did in our 2nd surgery.

we are also asking for prayers of wisdom as we take the information we gather in the next week and talk to our doctors about what our next steps should be. we so badly want to make the best decisions for lewis’ health, and we need critical discernment as we navigate the options.

lewis loves the book FOUND, which is based off of psalm 23. we have been feeling like we are in psalm 22, but trying to hold on until we get to psalm 23. it has been a nice reminder for all of us!

every day we ask for the Lord to have mercy & bring full healing to our precious little boy. thank you for holding us & sweet lewis in your prayers!